Hardcover: 320 pages
Publisher: Center Street (May 10, 2016)
Language: English
ISBN-10: 145556706X
ISBN-13: 978-1455567065
Product Dimensions: 6.5 x 1.2 x 9.5 inches
Shipping Weight: 1.1 pounds (View shipping rates and policies)
Average Customer Review: 3.9 out of 5 stars See all reviews (69 customer reviews)
Best Sellers Rank: #35,231 in Books (See Top 100 in Books) #121 in Books > Biographies & Memoirs > Professionals & Academics > Medical #1607 in Books > Biographies & Memoirs > Memoirs #3373 in Books > Humor & Entertainment
This is an excellent account of what growing up with Lyme is like. Despite her parents' wealth and means, she remained undiagnosed for many years. She didn't know what it was like to feel like a normal kid, thinking that her pain and cognitive problems were experienced by everyone, to a certain degree, and that she just needed to tough it out. If a child born to people of means can go for over a decade with a multitude of *classic* Lyme symptoms yet be dismissed by the best doctors around, you darn well know that children of lesser means are going to be treated the same way, and worse.Basically this book shines a light on everything a person with Lyme has to go through, from the misdiagnoses, to the disbelief of family and friends as to the severity of her condition (including even her own parents at times), to the inability of antibiotics alone to provide a cure. She cycled through dozens of doctors, even well-meaning Lyme literate doctors, seeking appropriate and effective treatment. Like many Lyme sufferers, she had to go beyond the antibiotic cocktails to recover her health, delving into more "alternative" treatments including detox, meditation, spiritual healing, and diet.This book isn't a prescription for recovering from Lyme. She doesn't provide detailed treatment notes and the like. It's an account of her experience living with the disease and how it came to be properly diagnosed. She does talk about her treatments as part of her overall experience with Lyme disease, but if you're looking for a cookbook cure for Lyme and co-infections, you won't find it here.The best part about this book is that it's written by a person whose name will encourage people who don't really understand the disease to read and learn about it.
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